I had my "How are things are going" appointment with my G. I. doctor this week. It was decided that we will continue to wait and see how well or not-well my symptoms go with the Rinvoq. I'm tapering off of prednisone and this will be my last week. (Although most likely not my last round.) I hope the Rinvoq steps up, of course, because I want to feel and be better, but also because July is going to be a very busy month, which means it will be a very bad time for my symptoms to kick up again.
We've signed up for the new insurance via the Open Market, but haven't received a medical card yet, nor could we find anywhere on the website where to print off a temporary one. Hopefully this will all get figured out before my current supply of Rinvoq runs out.
The current round of prednisone that I am just finishing up has been odd. It hasn't worked as fantastically well as it has in the past. I don't know if this is because of the Rinvoq or not. Also, my eyes have been funky. I had some blurry eye problems when I first started taking prednisone in early 2021, but my dose was twice as much at that time than it is now, and the blurriness went away as I tapered the dose down. This time, even as I've lowered the prednisone dose every week, my eyes are just off. They feel really dry and about mid-afternoon get very tired. My far-sight is definitely more blurry. I guess this could be a side-effect of the Rinvoq and not the prednisone.
My stool is still middle-loose to loose. (Sigh.) It was doing better about a week ago, but then slid back. However, I have had a few signs that maybe . . . . maybe . . . the urgency might be getting better. Might? Maybe? Possibly? My doctor says the Rinvoq might not have reached it full benefits yet. We'll keep hoping!
Next Update: August (No July) Only a Week Left
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