This month I upped my prednisone from two pills a day to two and a half pills a day. I started tapering down this morning. I'm feeling really good, as I usually do on prednisone, and going to the bathroom only once a day with an occasional twice a day, but my stool is still not all the way there. I'm not sure if it ever will be. But if it maintains at where it is now, I would be happy with that. I just wish the urgency would back down a little more. I am still concerned about whether I could do a long-term car trip where bathrooms may be far and few between.
We will be changing our health insurance this summer. As we are years away from Medicare, it has been an interesting journey. My husband has been delving into that murky, confusing world and I am so grateful for his diligence. He's been trying to find an insurance that will accommodate my many expensive medicines. We will see where we land on this.
I'm still trying to figure out if weather affects my health. It certainly does for some who have other chronic autoimmune diseases, but ulcerative colitis? Not sure. The thing is, since about my mid-forties, my body does not feel good from about the third week of February through whenever spring finally overcomes that final winter hurdle, be that in April or June. During that time, my muscles ache (sometimes badly) my brain is foggy, I am exhausted, and no matter what I do, I am cold all the time, like my body can't handle the cold anymore. My body feels like it is tensed up for months. But then it warms up and THEN I start feeling better, and my body finally relaxes again. After going through this for years now (and when we lived in New England, for most of the year), my hypothesis is that for some reason, my body sees being cold as an invasion and tries "fighting" it off. By mid-February it has been fighting for so long it just gives up. My body goes, "I can't do this anymore," and it just stops trying to regulate my temperature. Once the weather warms up, my body goes back to normal. I had a harder time in New England because summer is shorter there and my body didn't have time to adjust.
So for this month's health update, between the prednisone and the weather, for right now, I am doing good.
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