Will My Life Ever Be Normal Again?

The title question, "Will my life ever be normal again?" is a natural, human question we often ask ourselves after a painful life-changing event, no matter what it is. 

On the Reddit r/UlcerativeColitis thread, this question comes up a lot. It is often newly diagnosed patients, maybe a little (or a lot) scared and confused, who ask this. Sometimes it is people that have been diagnosed for several years but are still having severe symptoms because they have had trouble finding the right medication to get into remission. Sometimes it is asked by someone who is in a slight state of shock at their diagnosis and what has happened to them. Often the person asking is young and had plans and hopes for all the years still ahead of them that they now see crumbling away.

Let's consider the "normal" question. There is no definitive answer because every person and every diagnosis is different. For example, some people that I have seen ask this question say that they used to work out a lot, spend time in the gym, eat healthy, was a vegetarian or full vegan, had an active social life, or went drinking with friends. They want to know, will I be able to exercise again? Eat vegetables or spicy food, travel, drink, hike, date, have a relationship, or any number of other things?

Then there are people like me. I was never a "healthy" eater, but I wasn't a junk eater, either. I exercise some, but certainly not at the gym level. I'm not big on socializing, don't drink, have never been able to eat spicy food, and I'm married, thus dating is not a worry. So my back-to-normal expectations were nowhere near as lofty as others.

There may be some adjustments. I've read that a lot of UC patients cannot drink alcohol anymore. But they've also said that after getting used to that, they are much healthier in other ways because of it and grow to think of it as a positive.

Some people do have to rethink what they eat. But not all have to do that. When I'm in remission or approaching remission, I can eat almost anything. I haven't changed my diet hardly at all. The other side of that, though, is that when I am in a flare, ALL food causes problems. There is nothing I can eat that helps in a flare. I have to go straight to steroids.

So your normal could be having to change your whole diet, or change only some foods, or like me, change nothing at all.

Some UC / Crohn's patients achieve a partial remission with some continuing symptoms and think that is their new normal, not realizing that a partial remission leaves a lot of room for improvement. To reach the complete or mostly complete remission may require giving a medication more time to work or trying a different medication altogether.

The key word to getting back to normal is REMISSION. Remission, remission, remission! And in almost every diagnosis of UC or Crohn's, to get into remission you MUST go on lifetime medication.

Yes, that sounds scary. I understand. Suddenly you are dealing with constant medications, and not just regular medications, but specialized medications. That often means lots of time getting authorizations, trying to figure out payments and getting on possible payment reducing programs, going back and forth between your doctor's office, your insurance, and the pharmacy, sometimes for days at a time. But once that is done, you shouldn't have to worry about it for awhile. 

Some people have trouble remembering to take their medication everyday, and that can (and will) cause problems. This, I do not understand. Between my prescriptions and vitamins and minerals, I take nine pills a day. (At one point, I was taking seventeen pills.) I take them at the same time everyday, with all three of my meals and then when I brush my teeth at night. Because I take them at the same time, I don't have to give them much thought.

I know, some of you reading this (if there's anyone reading this!) are probably thinking, "But how can having to take medications EVERY SINGLE DAY be normal? If I have to think about it every day, my life won't be normal any more!" 

Here's the thing. Incorporating medications into your life may seem awkward and annoying, and adds just one more thing you have to do. But eventually, it will get to the point where it will start to feel normal and you won't even think about it. 

Pick the same time of day or evening to take your meds. That will help enormously to keep track of things. Taking your medications will become a habit, like brushing your teeth, taking a shower, or getting dressed. 

Here's the second thing. Those meds that you're thinking will keep your life from ever being normal again, are the very things that will eventually help your life be normal again! I've read where some UC patients reach remission so well they can run marathons. Or work out at the gym again. Or travel. Or hike. Or whatever! 

But that will not happen without your daily medications. 

It will also not happen without one other thing . . . TIME. We are used to going to our doctor for an illness, getting antibiotics or some other medication prescribed, taking the prescription and in a few days we are feeling better. 

That will not happen with ulcerative colitis or crohn's disease. It takes anywhere from three to six weeks, sometimes longer, to see if a medication is working for you. If it doesn't, then you have to try another medication and wait another month or so. It's like two inches forward and one inch back. This will continue until you find a medication that will bring you into remission.

It could take awhile. 

It is so easy to feel doubt and despair during this time, especially because your symptoms will still be active. It's hard to wait for the light at the end of tunnel when you don't know how long the tunnel runs. This is when that question, "Will my life ever be normal again?" may burn deeply and painfully.

But this is also where we need to remember the answer to that question. 

Will my life ever be normal again? While there are always exceptions, for the vast majority of us, the answer is . . . Yes! 

It WILL take medication and time. The light will eventually break through the darkness and the tunnel will eventually come to an end. And yes, life will be normal (or mostly normal) again!

Here are two ulcerative colitis reddit members responding to someone who did a post about struggling with their UC and they asked how others were dealing with all of the pain and other symptoms. These are wonderful responses:

From hellokriss:
Honestly, in the grand scope of things and being diagnosed 16 years ago I've been dealing with it very well. The right medication goes a very, very long way and has let me enjoy huge chunks of time in remission and enjoying my life/hobbies. (Like 11 + 2 years of remission vs 3ish total years of flares.) 

From Solid_Reality:
Mesalamine is the first line of defence. As helloKrissi said, you'll eventually find the right medication and honestly you won't even know you have the disease anymore. Don't throw in the towel yet, you're just getting started on this journey and honestly, it will turn you into a better person. I've gained so much more empathy dealing with this disease for 18 years. You'll be okay. 

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© Colitis Senioritis 2026 

Health Update, March 2026: Springtime Is Coming!

Still doing well! I have a follow-up appointment with my new G.I. in about ten days to go over test results that he wanted done because I am a new patient for him. I'm okay with that because one of the tests is a stool test, and I haven't had a stool test done in four years, so it's probably past time for one.

In my January health update, I said that when I contacted my family doctor to let him know we had moved three hundred miles away, I was told that my red blood cells were larger than normal, my MCV (Mean Corpuscular Volume) levels were elevated, and I should be referred to hematologist. 

I saw my new family doctor last week and had new blood tests done. The numbers are about the same. But my new doctor thinks my numbers are most likely where they are because of my ulcerative colitis. (My numbers are a little off, not a lot.) So, we will keep a watchful eye and re-test in a few months and see what happens. 

I wish I wasn't so tired, but I'm not as bad as some people. And the warm weather is coming, which the warmer sun and longer light usually invigorates me physically and mentally. So . . . come on springtime!

Previous update: February 2026, When Looking Young Gives One Pause 

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© Colitis Senioritis 2026

You Might Have Ulcerative Colitis If . . .

You’ve read them. Or heard them. The lists that say, “You might have (blank) if you (blank),” or “You know you (blank) if you . . .)

I heard a list called “You Know You Live in New England If . . .”, with the line, “you keep a snow scraper in your trunk all year long.” After living there for a couple of years, I laughed very hard at that one because it is so true!

A Reddit contributor on the r/UlcerativeColitis thread came up with a “You Might Have UC If . . .” I have reprinted it here, with permission from the original poster. (Possibly-deranged) I have also included some of the responses that people posted and added a few of my own.

I hope you find something here that makes you smile!

You Might Have UC If...

The only diary you keep chronicles the food you ate and its consequences the next morning, and you're meticulous on updating and analyzing it.

You know what the Bristol stool chart is and know your number.

You hold the household's gold metal in the 3 meter bathroom dash, all while skillfully jumping over, around, and tackling anything in your path.

You discover a floater carelessly left behind and experience poop envy and not disgust.

You know where every area bathroom is, how clean it is, and the all important how long you'll have until someone knocks.

You trust a gut gurgle even less than a used car salesman or politician.

You know a fart in public is like playing Russian Roulette.

Your medication cabinet and kitchen counter space is more extensive than a pharmacy, with drugs and supplements that no one has ever heard of.

You take the dog for a walk, and both end up pooping in the bushes. (Oh, you thought the doggy poop bags were for my dog's poop?)

When everyone knows your name at the doctor's office (or pharmacy) when you walk in, (like the old tv show Cheers).

You keep a flashlight in your toilet areas. (Embarrassed_Media)

You mapped out in your head where you can stop during your work commute or road trip or any trip involving a car. (Educational-Cookie51 )

You analyze whether or not you can go out without having to poop in the middle of the trip and know where every bathroom is in place you’ve been too more than once. (Quincy_Hater )

A portable bidet is part of your EDC (every day carry). (itscrunchtime )

Being excited to talk about a good poop then instantly remembering no one else wants to talk about poop. (Dur-gro-bol )

You pay for a gym membership and treat it more like a public restroom than a workout area. (pooptrackerIBS )

You’re a grown person but you keep adult diapers handy in your closet and car, just in case. – me

You carefully examine your stool after every bowel movement looking for evidence of whether your world is still good or about to fall apart. – me 

You have the PoopCheck app on your phone, just in case your own examination is not enough. - me (I do not have this app, but when I heard that there really was an app with this name, I had to put it on this list!) 

You read the ulcerative colitis Reddit thread almost every day. – me 

If I hear or think of any others, I will add them! 

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© Colitis Senioritis 2026 

Health Update, February 2025: When Looking Young Gives One Pause

Everything is good with my UC. I have an appointment with a family doctor in a month, so then I'll hopefully be able to find out what is going on with my blood.

I had my first appointment with a new G.I. doctor about three weeks ago (because we moved.) He's ordered blood tests and a stool test, which is not bad. I haven't had a stool test since I was first diagnosed four years ago. It's probably time.

But I have to say, he is young. At least he looks young. Like he's getting ready to take his driver's license exam.

He is also a bit . . . gung-ho? Excitable? Over the top? He reminds me of a student on the high school pep squad or cheerleader team trying to get the school body pumped up for a rival football game. Maybe I'm just used to my previous G.I. doctor who was older than me, but this new young doctor is a little hard to take. I'll wait and see if my lingering doubts about him persist or disappear. 

Next update: March 2026, Springtime is Coming! 

Previous update: January 2026, Why is There So Often a "However?"

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© Colitis Senioritis 2026

Why Words Matters (Guest Writer)

(From me): Words matter. Of course they do! A quick internet search provided these quotes from A.I. about the consequences of words:

  • "Words are, of course, the most powerful drug used by mankind." – Rudyard Kipling. 
  • "Words have energy and power with the ability to help, to heal, to hinder, to hurt, to harm, to humiliate and to humble." – Yehuda Berg. 
  • "A broken bone can heal, but the wound a word opens can fester forever." – Jessamyn West. 
  • "Words can inspire. And words can destroy." – Cochise (from "Ironweed"). 

Pretty strong reminders of the power we wield every time we open our mouths or write words that are meant to be read!

I've been thinking a lot about the words we use when talking about our ulcerative colitis, Crohn's disease, or other chronic conditions. I was going to write a post about it, but then I came across this article by Kelly J., of the InflammatoryBowelDisease.net community. Her post is much better than what I could have written. There is no contact information on her article or profile, so I hope it is okay to post her article on my blog.

Here is the link to her article on the InflammatoryBowelDisease.net website, and here is the link to her profile where you can access other great articles she has written.

Here is Kelly J's article:  

Why Language Matters
By Kelly J.,September 17, 2019

When a celebrity is on the news for being diagnosed with something serious or they are speaking about it, there is often a sort of “backlash” that several of us experience a little bit every time language is used that doesn’t match how we identify with our illness(es).

Recently when Hollywood took note of Selma Blair’s multiple sclerosis (MS), there was an outpouring of support for her. But sometimes, when it was reported on websites and TV stations, the verbiage started to get to me. It wasn’t just this instance that bothered me.

I studied Health Education/Administration and worked a majority of my adult years working in developmental disabilities, memory care facilities and working in the patient-first field. Mind you, some of these studies were around 2008, for reference. I say this because person-first language and “politically correct” terms have changed very much. At some point, the person-first language you were always taught, the politically correct ways and 3rd person (I/me talk) turn into a language of its own! :)

Wording that we suffer from a condition

Usually when we see diseases reported on in media, (there's) a negative language fence around it. The main phrase I’m referring to is “suffers from”. Now, it is, to me, definitely not a choice of IF you suffer.

Do I often struggle with complications with Crohn’s disease? I absolutely do. When I’m explaining my diagnosis and symptoms to someone, I don’t open with “I suffer with/from Crohn’s disease”, although it DOES feel like that some of the time. I want to be completely honest with the person I’m talking to, educating or that has asked. I just prefer to hear/read “lives with”.

I won’t give a big emotional, motivational speech. We have zero control of when flares come and go, and the seriousness of IBD is often misconstrued on TV, film and especially in big Pharma commercials. We struggle sometimes. We suffer others. We pick ourselves up repeatedly, only to face more serious flares and potential surgeries, life-altering medications and side effects. Do I suffer? I absolutely do. And I can’t imagine anyone with the disease saying that suffering isn’t a part of this disease. But I also don’t need anyone to tell me that “the amount of suffering you feel is up to you”. It’s trash and I lose respect for people that try to kick me when I’m down with comments like that.

Choosing language carefully

The more careful we are about our language, the more the media will hopefully take into consideration how we would like to be “classified” as. I don’t want the label that I "suffer from" a condition because it affects the way that people treat me, the way they understand the disease, and how I handle my condition. By NO means am I not taking into consideration how others feel - please don’t misconstrue what I mean. So often in the media, we see images and hear stories about how people “suffer” from a disease. I feel that it labels us and puts us into a corner. We need to be more careful with the language we use in writing and verbally to ensure that people get an accurate portrayal of what life with Crohn's or colitis is like.

I prefer to read “lives with” when seeing anything on social media and in print, for the most part. Maybe you prefer something completely different. I’m not saying my way is the right way and I’m not trying to invalidate anyone’s feelings or writing styles. I’m simply here to be a voice to the many people on this site who also don’t like to see verbiage like “suffer” when the public already has conflicting stigmas about inflammatory bowel disease. There is no sugar-coating living with perianal disease.

I realize there are going to be a lot of people that disagree with what I’m saying, but as someone who has lived with several diseases since youth, I want to be able to take control of how language is used when mentioning someone lives with a disease.

(What a great article! If you want to post a comment about Kelly J's article, click here and go to the end of the article. You will need to sign in.)

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© Colitis Senioritis 2026 


Health Update, January 2026: Why is There So Often a "However"?

My ulcerative colitis is still under control. (When I say that, it should always be followed with "for the most part" because although I'm in remission, I still have off days now and again, though I don't know why.)

That is great news. However (so often there is a 'However'), something else has come up.

As I have written about for the last two months, we put our house on the market, sold it, bought another, and moved south. The weather is much warmer now!

I contacted my family doctor to let his office know that I had moved. A few days later, my doctor's medical aide called and said that when I found a new doctor, I was to let them know that my red blood cells were larger than normal, my MCV (Mean Corpuscular Volume) levels were elevated, and I should be referred to hematologist.

These numbers can indicate any number of problems, from a B12/folate deficiency to anemia to liver disease or cancer. It can also be caused by medications. I have an appointment with a new family doctor in two months. As they put me on a waiting list in case a spot opens up sooner, I hope to get into the doctor sooner.

In the meantime, I will not worry about it. No one benefits from the kind of stress brought on by "What ifs." Also, my previous family doctor waited months to tell me about this. If this was serious, I would have thought that he would have contacted me much sooner.   

I AM terribly tired. Ever since puberty, I have always been extra tired, but lately it has seemed more so. Maybe finding and treating whatever is causing my elevated MCV numbers will help lesson my fatigue. That would be wonderful.

Next update: February 2026, When Looking Young Gives One Pause 

Previous update: December 2025, A Strange Hiccup, But No Worries

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© Colitis Senioritis 2026

Will My Life Ever Be Normal Again?

The title question, "Will my life ever be normal again?" is a natural, human question we often ask ourselves after a painful life-...